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Genetics and regulation
How genetic research, and its application in medicine and society, is regulated.
Background
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Protecting people from the wrongful use of their personal information by others. 12/05/03
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Advises on the ethical acceptability of proposals for gene therapy research on humans. 19/07/02
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Main UK bodies are Department of the Environment, Food and Rural Affairs; Food Standards Agency; and Health and Safety Executive. 19/07/02
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The US Agencies primarily responsible for regulating the development and exploitation of genetically modified organisms are the Animal and Plant Health Inspection Service (APHIS), the Environmental Protection Agency (EPA) and the Food and Drug Administration (FDA). 19/07/02
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Independent review body set up to evaluate the use of genetic tests by the insurance industry. 19/07/02
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The HFEA regulates any UK research or treatment involving the creation, storage and use of human embryos, and the storage and use of human eggs and sperm. 19/07/02
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Including the National Institutes of Health (NIH), the Food and Drug Administration (FDA) and the Centers for Disease Control (CDC). 19/07/02
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The Human Genetics Commission provides expert advice on current developments in human genetics and medicine, and the broad ethical and social issues that arise from them. 19/07/02
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The Human Reproductive Cloning Act (2001) makes the implantation of a cloned embryo into a woman a criminal offence. 19/07/02
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Research Ethics Committees are responsible for reviewing all research proposals that involve the use of NHS patients, their organs, tissues or data, to ensure that the studies comply with recognised national and international ethical standards. 19/07/02
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The Human Fertilisation and Embryology Act (1990) makes provisions to license and monitor the performance of fertility treatment clinics, and any research using human embryos. 19/07/02
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